Comprehensive Care for adolescents and young adults

Sickle Cell Disease doesn’t define your future

Without your pediatrician, managing your own health can seem overwhelming

At the Centers of Excellence, a team of specialists are ready to guide you through every step to keep you strong, energized, and pain-free.

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As a Sickle Cell Warrior

you’ve faced more challenges than most

While your friends are busy avoiding the doctor, that doesn’t work for you.

You know what happens when you don’t listen to your body’s needs — a pain crisis that takes you out of commission and into the hospital for days… or weeks.

Sickle cell disease can’t be ignored. However, the specialists at the FSCDR's Centers of Excellence understand how the disease affects your body. They have experience with the latest treatments to keep the pain manageable.

They get that you need more than a quick visit to keep you going. You need a medical team that handles every aspect of your care, from insurance counseling and IEPs to special treatments like infusions.

You’ve got better plans than waiting for another pain crisis.

We’re here to make sickle cell disease a small detail of your life so you can focus on your future.

Schedule an appointment with your new team of specialists today.

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Services at the Centers of Excellence

Infusions

Medications, vitamins, and nutrients delivered with an IV.

Transcranial Doppler Ultrasound

This checks blood flow in your brain to keep strokes at bay.

Medication and Pain Management

Doctors will adjust medications to find the right balance for you.

Individualized Education Program (IEP)

Get the school accommodations you need to succeed.

Telemedicine Appointments

Access your team in between appointments from anywhere.

Care
Coordination

We help you navigate insurance and care with other specialists.

Vaccinations and Preventative Care

Sickle Cell Warriors need to stay up to date with their vaccines!

Education and
Resources

We teach how to prioritize good health as a lifelong practice.

We’re your partner in sickle cell research.

The Centers of Excellence are brought to you by the Foundation for Sickle Cell Disease Research. Your medical team is part of the research movement, advocating for the cure on behalf of every Sickle Cell Warrior.

That’s how they can offer you the best treatments and customized plans that are proven to work. We’re not just about keeping you healthy today. We’re pushing for a pain-free tomorrow.

Better yet: Sickle Cell Warriors at our Centers often get access to clinical research opportunities through the advocacy of our medical team. We’ve seen the lives of our patients transformed, and we want that for you too.

We also host annual symposia designed to showcase research and treatments. These events bring together researchers, medical professionals and the Sickle Cell Warrior community around a common fight.

To connect to the community, join us at an upcoming Symposium!

learn about the symposium